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hi all had a rough afternoon. it looks like my husband may need some surgery to replace two shunts in his brain. he has hydrocephalus which is a cyst on the brain. so we need to have a mri done and then back to the doctor tuesday. i am exhausted and a little stressed so please see thread for full details. hugs and love all!

Posted on Wed Jan 26 17:33:15 PST 2011

Hey lil sis I'm so so sorry for this. If there is anything I can do for you please don't hesitate to let me know. I'm always here for you and I will be keeping you both in my thoughts and prayers. Please keep me posted on what is going on and remember I'm here if you need anything at all. God Bless you both ! Love you !

Posted on Wed Jan 26 22:54:06 PST 2011

Hey Ms. Lynne: I'm so sorry to be reading this. If he does need surgery I sure hope all goes well. I'll definitely keep you both in my thoughts. Hugs to ya Ms. Lynne.

Posted on Wed Jan 26 23:24:49 PST 2011

thank you both so much. it means the world right now!

Posted on Thu Jan 27 05:25:10 PST 2011

Lynne

best of luck to hubby. It's great to know that we ( in spite of the huge costs of health care )
have the best physicians the world can offer. I hope the two of you have a mindset that a very positive mental attitude is important in dealing with medical issues. Please keep us posted as events pass.

Poppa

Posted on Thu Jan 27 07:06:12 PST 2011

poppa this is one thing we always knew would happen one day. and the advances that have been made in this area are amazing. we are as prepared as we can be for this and are just waiting for the results on wensday.

Posted on Thu Jan 27 07:09:30 PST 2011

well hubby is taking medical leave from work as of tomorrow. better than losing his job in all the uncertainty especially with his symptoms. the shipyard is just not a good place for him now. so i applied for public assistance and now i hope and pray we get it until the short then long term disability comes

Posted on Sun Jan 30 09:57:46 PST 2011

Lynne, so sorry to read of your trials right now... such a lot for you to be carrying. Have faith, most of all in each other, and keep each other strong and hands held tight. And have faith, as poppa pointed out, in the doctors. They can do amazing things, and I've witnessed it with my own spouse. Sending you love and strength.

Posted on Sun Jan 30 11:46:29 PST 2011

rough night here. just got back from the er with hubby. he had serious inter-cranial pressure and a migraine. so we called the on call doctor who sent him straight to the er. pressure is still there but the migraine is. gone. they gave him some meds to reduce the pressure. they are starting to work slowly as they are diuretics. they did several tests and something is definitely up with his shunts. so now we wait until Wednesday for the rest of the info.


mooma thank you ever so much!

Posted on Sun Jan 30 22:06:41 PST 2011

Hey lil Lynne I'm so sorry to be reading you and hubby had a rough night here. I just wanted to you to know that you both are in my thoughts and sending hugs to you both and lots of strength. We're all here for ya lil Lynne.

Posted on Sun Jan 30 22:58:23 PST 2011

Hey lil sis I'm so sorry to hear you had a rough night what happened. If you need anything please let me know and I will be thinking of you both and I just want you to know I'm here and I'm so sorry. Stay strong lil sis and let me know what goes on. Love ya !

Posted on Sun Jan 30 23:15:23 PST 2011

thanks so much you two. i am gonna just sit here and cry cause you are so amazing.

Posted on Mon Jan 31 05:21:41 PST 2011

Hey lil sis just wanted you to know that I love ya and I'm always here for you anytime day or night and don't cry everything is going to be okay and I'll do everything I can to make it better for you. Just stay strong and be brave like I know you are. Love ya much !

Posted on Mon Jan 31 10:04:25 PST 2011

home from the neurologists at long last. we got worked in due to er trip last night. phew what a day. tomorrow we see the neurosurgeon to figure out what we are going to do. there is definitely a problem with his shunts. last night's x rays showed that the left shunt is not connected to the catheter tubing. so definitely need to do something. will let you all know as soon as i can what is up. he is better today as the migraine is gone but the pressure is still there. thank you all so much for your thoughts and prayers. they are beyond value and are keeping me sane and calm.

Posted on Mon Jan 31 13:43:08 PST 2011

Hey lil Lynne thanks for the update. I'm glad to be reading he is doing better today and yes hopefully they can do something. My thoughts and hugs are going out to both of you.

Oh and you know what lil Lynne? Don't cry because you think we are amazing as we all have our trials to go through at times. Life is pretty overwhelming at times for all of us but the thing about that is, there is always someone to help get you through even a forum such as this. As for crying, if you feel the need to do so, well you go right ahead. Sometimes just need to let it all out, ya know? And that's OK. That's no sign of any kind of weakness in my opinion anyway. Not good to keep it all bottled up inside. So you just do what you need to do to get through each day. Just take it one day at a time and know that we are here for you. Just take care of yourself and hubby too the best that you can. Now don't you go a spending too much time on the crying but every once in a while it is a good release, to let it all out as I said. OK!

Yes and do keep us posted as soon as you can!





to your husband!

Posted on Mon Jan 31 15:30:49 PST 2011

Hey sissy I'm glad you got to see someone so quick. I hope things go well tomorrow and please let us know when you find out something. I'm so sorry this is happening and I hope it is something they can clear up and get straightened out quick so he doesn't have to be in anymore pain and you can all get some rest again. If you need anything at all just let me know I'm here for you anytime day or night just give the word. I will be thinking and praying for you tomorrow and I hope everything goes well and that your hubby feels better real soon. Thinking of you both and sending big hug's and lots of love your way. Love ya Lynne !

Posted on Mon Jan 31 20:38:16 PST 2011

thanks sporty and miss g! hi all well we have to take hubby to a different hospital about 6 hours away. to shans in gainesville florid for more tests. there are test that need to be run that are not available here locally. so it takes about 2 weeks to get an appointment. the surgeon definitely thinks something is up considering all his symptoms they just don't know what. his symptoms are migraines, coordination problems, balance issues, pressure around his shunts and a ton of other things. so we wait....

Posted on Tue Feb 01 11:38:54 PST 2011

Thanks for the updates lynne... keep hanging in there, you're both doing great even though you want to break down at times. We are always as strong as our Love, and that's the greatest thing on earth. And when we have to wait, it's usually for very good things! Sending you strength and love from the outside here.

Posted on Tue Feb 01 11:52:54 PST 2011

Hi lil Lynne! Thanks for the update. Just popped in here to send more hugs and strength your way and as Mooma stated sometimes when we have to wait it's usually for something good. Just keep hanging in there as it sounds like even though you will have to travel a ways this place may be able to help which I sure hope so!

Posted on Tue Feb 01 23:14:31 PST 2011

thanks mooma and sporty. things are mellowing here at last. hubby has realized his symptoms are here to stay and they scare him less so he is relaxed a lot.

Posted on Thu Feb 03 07:41:39 PST 2011

thanks mooma and sporty. things are mellowing here at last. hubby has realized his symptoms are here to stay and they scare him less so he is relaxed a lot.

Posted on Thu Feb 03 07:41:40 PST 2011

That's a really good thing, lynne... his stress will be lessened so he won't add to his own symptoms with that. And once we accept something, it's sooo much easier to get through... and easier on you, also.

Posted on Thu Feb 03 14:07:16 PST 2011

MY dear couch sharing friend, I just found out about your hubby and came out of hibernation to let you know that you are loved. I've been on both sides of the bed and know how hard it is for both of you, but also know how much your presence is being appreciated. You have been thru so much and stand so tall and strong..you are a gem. A diamond in the rough! lol! But seriously, I have learned a lot from you. (dedication, faith and fortitude)
I have been in a lot of pain myself for a few months with out relief so just pulled the covers over my head but I know you must also be in pain and push on so please tell me something to get me going. I don't know how you do it but give you a lot of credit.

I will pray for you and your hubby and also send you some {{hugs}}

Posted on Fri Feb 04 20:28:20 PST 2011

aww room thank you so much. honestly what gets me out of bed everyday is simple. i can lay in bed and mourn all things i have lost due to the chronic pain or i can get up and live my life. yeah there are days i need to take a nap (a lot of days) and days i hurt so much i don't move from the bed more than to change location. so get up and live!

Posted on Sat Feb 05 06:11:40 PST 2011

lynne8179 wrote: honestly what gets me out of bed everyday is simple. i can lay in bed and mourn all things i have lost due to the chronic pain or i can get up and live my life. yeah there are days i need to take a nap (a lot of days) and days i hurt so much i don't move from the bed more than to change location. so get up and live!

Hey lil Lynne I'm so glad things are mellowing out for you. Yes and you're correct as I deal with chronic pain every day as I have pretty severe RA which I've had for the past almost 21 years now. 99% of the time I'm pretty upbeat, positive, motivated but I do have them days just like everyone else where you don't think you can get up and go. Cause there are days it takes me at least a good hour if not longer to get moving and that's when I usually turn to the "Swayze" I call it. Patrick Swayze as that's my hero there. I will get on this computer and watch that last video he did before he passed talking about his cancer, laying on floor and taking everything he's got to get up and do that TV show he was working on. He sure did get going though and worked on the show. Well after watching that, that always lights a fire under my @$$ so to speak to get up and get moving.

My boss sometimes says to me at work... "You really look like you're hurting today." And I always say... "Yeah but I've got my "Swayze" on and you just watch and see what I pull off here and those are usually my most productive days at the day job.

Posted on Sat Feb 05 06:55:28 PST 2011

Hi guys, I knew you could relate with having similar health problems and pain. I have always had the same idea that you can either sulk or smile at the hand life has dealt you, and I have had some winners... but lately the new medication I'm on for seizers has put me into a funky brain fog. That combined with the pain makes me just melt into the couch for a moment in time that ends up being the whole day.

...new program: I think I can! I think I can! I think I can! I think I can!... thanks for the kick in the butt, hope you both are doing well today and we get to chat again soon.

Posted on Sun Feb 06 19:19:13 PST 2011

Well hey there Ms. Roomy it's great to see you here and yes I know what you mean about the medications and putting you in a funk brain fog though I will say so far and hopefully never do have to deal with seizures. I've been on A LOT of the what I call nonsense however over the years for my RA - major weight loss/gain, deep depression, and one piece of nonsense I was on I had to have a blood transfusion. Been dealing with the RA thing here since I've been 18 and I'll be 40 this year so as Mooma stated earlier once you learn to accept what you've been dealt makes it a whole lot easier.

What do I take for the RA now? A whole lot of nothing really. Just a whole lot of positive attitude and a few arthritis pain pills once I get up and going (which is the challenge) usually does it for me and one of the reasons I usually work so many hours because when I'm there a typing on that keyboard, got the music a going a whole different person because I take that pain and put it into my work. I don't feel it near as much because I'm focused on my work. Yes typing and I have some pretty ugly hands from surgery and arthritis. The experts told me back in 1995 that I would never be able to type again to find another line of work. Quit the day job and find something else but the stubborn gal that I am and that NO word is a pretty powerful word with me, I went and found a job that required even more typing and went from about 30 to 40 words a minute to a whopping about 100 with a few typos thrown in there.

If I dug my grave every time one of the experts told me something well I'd be eating chop suey in China by now. I'm pretty pain tolerant just like that late Patrick. After about 21 years now just use to it. I also get this A LOT at the day job

Is it easy? Heck no it's not at all. As I told lil Lynne earlier about the crying as it's OK. I've had days where I break down and cry and it's usually for about 10 minutes, enough time to watch the Patrick clip on my computer. When I'm finished watching that... Then thinking to myself.... "Well now that I've got that all out of my system." Go on about the day the best that I can. I've been told I'm going to slow way down some day. Well aren't we all but in the meantime I'm kicking butt and taking names as the saying goes until that day comes which I know it will eventually.

You just hang in there Ms. Roomy and you too lil Lynne and hubby. I'm sending hugs and strength to you both.

Posted on Sun Feb 06 21:21:53 PST 2011

Ms Sporty, thanks so much for the pep talk. I too have had RA/OR and fibro for years with having survived cancer twice (kemo, radiation & surgery) heart attacks, plus a multitude of problems that came along as a result of treatment...ha. I remember being told that "the cure" could kill you. Well there have been some days I wish it did...but I'm too stuborn. I also spent a long time depressed until I realizied it can always be a lot worse so why complain. I like to call it 'sharing' so when I hear what others are going thru I don't feel so bad...silly huh. And coming here to just let loose was so nice. really helped many days.
I'm so glad you have been able to work thru the pain. I used to love to paint and play with clay but now my left side is numb and doc's won't give me pain med's. just tylenol and that don't cut it. Don't get me wrong I'm not looking for pity but it is good to know I have peeps out there pulling for me. I'll try to blow out the cobwebs more often so I can stop by to visit.

Posted on Mon Feb 07 18:40:35 PST 2011

Dear lynne, pray all is going as expected and improving every day. Hope to hear from you soon. Sending Hippo Hugs and Kisses.

Posted on Mon Feb 07 19:03:21 PST 2011

Hey there Ms. Room:

That's all I was doing too was 'sharing' as you had stated because I know that there are people who have more health issues than myself and that's another thing that keeps me going. I'm also not looking for pitty either nor will I give it to anyone. Don't have time for that nor will I take time for it (receiving pitty or giving it) but if someone needs hugs and strength well I'm willing to do that. I've also been told throughout my life here that you're never given more than you can handle. For the most part I believe that cause I believe the more stuff that's thrown at you just makes you a stronger person but I'll be honest there are some days I question that but just keep plugging along the best I can.

PS. I'm one of the peeps who is pulling for you and lil Lynne and her hubby. Sending more hugs and strength to ya all.

Posted on Mon Feb 07 21:26:56 PST 2011

hey there roomie! and yay hippos you know i love my hippos! got a new for an early v-day present she is pink and red and is a ty beanie lol. so cute! hubby is doing good restless as all get out. got migraine meds finally so that is healing a ton. doctor here said we should here from shands by friday so crossing my everythings! sporty thanks for all the support and friendship! mooma thank you so very very much for the same things! and as always thanks to my heart twin for everything!!

Posted on Tue Feb 08 05:48:48 PST 2011

Hey sissy you don't have to thank me for anything I just want you to know that I care and that you don't have to face this alone. I'm so glad to hear that they have give hubby some meds for the pain. I hope and pray they will get this resolved quickly for both of you so you can get on with life as normal. I'm so so sorry you both are having to go through all of this and my heart just goes out to you and your husband and I wish there was something I could do for you I can offer you all the shoulder you need if that is any comfort to you. I'm here for you day or night and you both are constantly on my mind. Stay strong both of you and I know you are. Your gonna beat this thing I know it you have way too many people on your side not too. If you need anything at all don't hesitate to come to me just remember what I said before I am my sister's keeper and I mean that. Take care and God Bless you both. Big warm fluffy hug's and much love to you !

May these flames burn ever so bright for you !

Posted on Tue Feb 08 19:41:08 PST 2011

Well hey there lil Lynne. I'm so glad that hubby is more under control now with the meds and hopefully get in to the doc this Friday. That's great! You are also more than welcome as far as support and friendship goes. I'm send more hugs and strength out to your both.

Posted on Tue Feb 08 22:35:28 PST 2011

hubbys appointment is tuesday the 15th and we leave monday and will be back wensday.

Posted on Fri Feb 11 06:32:42 PST 2011

Hay all... (yeah, that's hay for horses... or cows...) so good to see my roomie posting here... hey, room-mate! I knows ya, yes I do, and the pain you feel I feel for you... and me too! Go through the grinder meself some days, but you've got it, sporty... pity ain't too pretty. Honestly, I guess I pity the bum who lies in the street and feels no worth or no reason to get up and move or ask for help... I pity the child who lies tossed aside before they can speak for themselves. But the rest of us have gotta get up and move on, and if our problem is operable, then god bless the surgeons who have studied our illness. So there's no one here whom I pity, only those whom I love and wish the better for. Let us light each others sparks.

Posted on Fri Feb 11 21:53:11 PST 2011

getting ready to leave at 8. will be home sometime tuesday evening will let you know what i know then! hugs and love and happy v-day!

Posted on Mon Feb 14 05:23:53 PST 2011

hey all got home about an hour ago sorry to keep everyone on pins and needles.hubby is having what compared to the original surgery is a minor thing. they are going to drill an hole in the top of his skull and use an endoscope to fix a blockage of the area in the brain that releases spinal fluid. surgery is on monday the 21st. he will be in the hospital about 3 days and out of work six weeks.we will be in gainesville for about a week with no computer! so i will have kitten update everyone as she can. any questions ask me.

Posted on Wed Feb 16 10:10:11 PST 2011

hey all we are leaving tomorrow. i don't own a laptop but i will do my best to let you all know how the surgery went as soon as i can.

Posted on Sat Feb 19 15:31:41 PST 2011

hey all we are leaving tomorrow. i don't own a laptop but i will do my best to let you all know how the surgery went as soon as i can.

Posted on Sat Feb 19 15:31:44 PST 2011

Hi Lynne,

you two are in my thoughts and prayers and I'll keep my fingers crossed, that everything goes well!

Best wishes

Elven

Posted on Sun Feb 20 09:49:38 PST 2011

Hi lil Lynne:

Just letting you know that you and hubby are in my thoughts here and sending hugs. Sure hope all goes well. Look forward to reading from ya here. Take care and many hugs going out to you both.

Posted on Mon Feb 21 23:04:20 PST 2011

Hi everyone I'm sorry I'm so late posting this but I've been sick myself and my brain still is not functioning to good. I spoke with Lynne yesterday and her husband was in surgery she said after surgery he would be in recovery for a while. I found out tonight that the surgery went well and everything is fine and hopefully they will be returning home soon. If I find out anything else I will post it here for you all and again I'm sorry it took me so long to do this. Have a great night everyone and WAY TO GO JEREMIAH AND LYNNE ! Get Well and Hurry Home Soon ! God Bless !

Posted on Tue Feb 22 20:27:38 PST 2011

ladies i am and hubby are home. very tired so will let you all know more tomorrow. the surgery worked quiet well. the surgeons exact words when he told me it worked were well we drilled the bore hole and it gushed! so definitely worked. hubby's head obviously hurts but there is no more pressure. he has ten staples that can be removed in 10 days and no hair. hugs and love and many may thanks for all you have done. sis thanks so much sorry i never called back the phone ended up glued to my ear with family lol!

Posted on Wed Feb 23 11:14:31 PST 2011

Hey sissy that is great news I'm so glad all went well and you are both back at home. No need to apologize for not calling back I completely understand the main thing is everything was a success and now the healing can begin. Go and get some rest both of you and I'm so glad it went well and you both are home safe and sound. God Bless you both ! Love ya sissy !

Posted on Wed Feb 23 11:40:51 PST 2011

hey all hubby is getting better. has a little more enrgy and ready to get his staples out on friday. he is slowly gaining all his strength back and he is thrilled. we go back to gainesville march 22nd for post op!

Posted on Tue Mar 01 07:31:56 PST 2011

Lynne, this is a beautiful post indeed! I wish him continued stamina and healing, and continued strength on your side. The human body is a miracle, and the mind even more so.

Posted on Wed Mar 02 20:39:02 PST 2011